
I had to pull over to write this.
It could not wait.
Gary died five hundred eighty-nine days ago. This couldn’t wait another minute.
i think you would be proud
of who i have had to become.

I had to pull over to write this.
It could not wait.
Gary died five hundred eighty-nine days ago. This couldn’t wait another minute.
i think you would be proud
of who i have had to become.
All things bright and sharp.
oversharp.
Overloading.
need.
need more.
louder.
More.
faster. more.
So much more.
gripping onto the last grains of control.
watching them slip through my fingers.

I could not have done this yesterday.
Nor the day before, or the
one before that, no.
Even though it meant that whatever
Whatever it is growing rapidly had extra time.
I could not have done this yesterday.
I pulled myself together and made a plan
and altered that plan the second it needed be.
I kept my head,
channeled my fear into anger
Not rage,
Anger.
Anger, while focused, can be productive.
Rage, always focused, never is.
Always is destructive..
I could not have done this yesterday.
I only hope I don’t have needed to anyway.


Waiting in this room by myself with our cat
With Teaz’ka
Ivan Rumpelteazer, first of his name
Cleverly named, loved more than life itself.
I am so angry at you for being dead.
You aren’t here to be with us
You aren’t here to talk to
You aren’t here to be overrun with emotion with me
You aren’t here to console him, to console me. We are alone.
You aren’t here.
My heart. Oh, my heart.
I was hunting around in the vast artbeast mess of a dining room looking for A2 cello sleeves for the new cards that are drying. What I found. What I found is my orange Filofax that has been missing for four and a half years. The origami envelope that Gary made to enclose Sonnet 145 for me in its back pocket. Addressed to “my Glitter Girl”. I am overcome, overwhelmed. Weeping, shaking in my grief.



Also in its depths: a line from Hamlet, penned by someone dear I cannot remember, fallen whiskers of cats long-dead, a collaged card with a photo from 1959 with both my father and grandfather, a note from my stepmother about the ApoE4 gene which my father has a double version of, a small version of my own handprint to be made into a photopolymer letterpress die, fortune cookie widsom from Arthur Ashe, hastily written notes about multiform PVCs and success rates of ablation surgery (70%).
This is why the bar is set so high.






today i wanted to be dead.
i didn’t want to kill myself,
i didn’t want to die.
i wanted to be dead.
i wanted to not be anymore.
i was dysphoric and abyssally depressed and griefstruck and i
had to pull the car off the road because i could not see the road through my tears.
music blasting, car rocking from the drafts of the other cars speeding by, shoulders shaking. screaming into the sky. i can’t. i can’t. i can’t do this anymore. why? why? why?
weeping. wailing. shrieking. howling in pain.
desperately calling up mental images to save me, of those i love, of those i do not want to live without. replaying their voices, their words, their murmurs of love, of promises. bring me back. keep me here. keep me safe.
i am having a very hard time wanting to be alive right now.
this too, shall pass. and it is all for the good.
i didn’t want to kill myself,
i wanted to not be anymore.
i got back on the road, got to where i’d set out to be, inexpertly rolled a joint, smoked half of it, got to work. two and a half hours later, my rage was exhausted, driven out by the tediousness of the work, for when your work, your passion requires exquisite concentration you really can think of nothing else. or at least, only the good things. and as i listened to delicious music and smoked delectable herb and mesmerized myself thinking about delightful people and mindbending experiences, this beautiful thing came to life in my hands.

8:32p cleaning my studio, trying with every nanogram of fortitude that i have to do everything i can to distract myself from the sheer rage and dysphoria of the past few hours. microdosing because while i need the edge off i need to function. i found a folder, a thick, purple folder. loose papers, typed, dot-matrix printed, mimeographed, handwritten. love letters. prose and prose poetry from school: from high school, from Purchase, from Sarah Lawrence. from Columbia. Powerful fucking shit, all exhaled before I turned twenty-five, before I was finally properly diagnosed. Before I was medicated with any stab at accuracy.
Ultra-ultra or Ultradian Rapid Cycling Bipolar Disorder Type 1. Genetic. Incurable. Barely treatable in any humane way. I have been on every med, every cocktail of meds from A to Z. Abilify to Zyprexa and everything in between. Nothing helped. No thing. Nobody useful understands it. But that is an extremely long and twisty tale for not-now.
My throat is raw from shouting, nay, screaming into the air at my phone, venting and shrieking with rage, crying, weeping, wailing. I haven’t plummeted into a pure dysphoric state like this in a really long time. But spring is here; the Northern Hemisphere is humming with growing energy and my mania is at 11. I’ve always done my level (get it? level? ha!) best to ride the euphoric waves when they come, ride them like the most skilled of surfers, to ease s l o w l y into the shallow waters of normalcy. And instead of coasting, I have been relentlessly nudged, pushed, shoved, and finally kicked over the edge of the tsunami.
Add the advent of Springtime? Mother Fucking Nature giving a big double-fisted flip of the birds FUUUUUCK YOOOOOU to a great many of us with bipolar 1, with all her manic growing energy exploding everywhere. You tell someone, anyone not-bipolar that you hate spring and they look at you like you’ve sprouted a second head, Zaphod Beeblebrox-style.
it’s now 10:03p. I’ve chilled down considerably thanks to virtual handholding by some of the very best people I know (I know a lot of really amazing folx), liberal amounts of cannabis, chocolate chip cookies (the chewy ones), and music loud enough to drown down most of the noise in my head. Chilled down enough to lower the volume, even.
Back to 1991. A love letter to the man who would become my second ex-husband (there are two of those). As with most of my writing, untitled save for the (time and) date I put pen to paper. Unedited, below.
august 6, 1991
this void before me
dark and deep as oblivion
the blackness so complete
so in/visible
so thick it offends my tactile senses
tries to seep into the crevices of my mind and heart like molten tar
to sink me into its depths
one would expect its silence to be absolute
at times it is
at others it is a manic chatterbox, radio static
words, images surface then fade away
i try to tune in the message being sent
listen very hard and close
i get an inkling of its purpose
strain to make it come clearer
a silence, then singular sound
hesitant and specific both
the velvet drape that has laid so heavily over my heart lifts
eyes open, wide with realization and more than a little fear
your intent is clear
you mean to sweep me off my feet
make me incapable of speech, and breath
even in my joy your words keep me on edge, waiting
will forever if necessary
for you are
necessary.
When explaining about my illness I generally use a similar, while less-lyrical description of what it’s like to be inside my skull: imagine you’re at Best Buy. On a Saturday. At Christmastime. Every single noisemaking thing is turned on. Full blast. To a different channel. And no one can turn them off. And you’re locked in, can’t escape.
Vague, hazy memories I can dredge up about what prompted the above were very simply bullshit fabrications, smoke and mirrors meant to accomplish what they did: transparent wisps of promises of promises posed to seduce, only to ultimately disappoint. To expertly feed into my addiction to normalcy.
When I think about the time and energy and tears I have wasted fearing I am too much or not enough, when I count up the ways in which I was told I was not good enough, when I am presupposed, underestimated, predetermined, dismissed, I want to scream into that void. What will it take? No amount of explaining, of showing not telling, nothing. No thing. No proof is enough.
I am, at this point in my life, exquisitely aware of my words, of my face, of my tone. Words are everything to me; they are my primary Love Language, with touch a close second. I don’t ever say things I don’t mean, I do not wield barbs haphazardly for I am acutely aware of the lifelong damage they can and do inflict. It takes everything I have within me to maintain an outwardly even, if carbonated, persona.
It has taken everything in my power, every trick in my book to come back to the barest semblance of order. I screamed, and cried, and was explicit in my description of the depths of my rage, but I was also able to listen, and to be calmed, and to be cared for. To be validated, not coddled but heard. That is the most important thing in the world to me: to be heard. See me.
Know who I am.
I see a small cloud in the sky sort of in the shape of an anatomical heart. I so much want to ask you if you can see it too, or if you just see a slightly muddled shape. So many things I have thought of to ask you since you’ve been gone. And I can’t.
From 21 September, 2018
So this is how Gary and I discovered that he had aphantasia, and that I have hyperphantasia. If you, too, “dream blind” or at the opposite end, “cannot unsee” things, I think you’ll be interested in this and the attendant questionnaire. This article, written two years before Gary died, is what allowed us to truly begin fixing some terribly broken things in our marriage.

From 2017, three days gone:
So.
I am not ever one to ask for help. But I am one to realize when things are beyond my grasp, beyond my capabilities. So with all of the love and support and heart that you all have shown me from the beginning of this total and complete horror show (and really? For a long time before this), I am learning to ask for help.
My friend Jennifer (has) created a YouCaring fundraiser for me, to help get me through this next part of my life. This difficult, insanely stressful part of my life.
Thank you all for the love you have shown, and continue to show me and Gary.
From 2018, one year and three days gone :
The daily struggle to survive is real. The money that everyone so generously raised last year paid for Gary to be cremated. That’s it. The entire $4600. Every day since, every bill, every single thing gets weighed in importance. I’ve been putting off Mojo getting his teeth cleaned because I need to return more bottles and cans. Somewhere along the way the YC fundrasiser page disappeared. No clue.
There was no life insurance, no pension, no 401(k). It’s all on me, my part-time job, and selling my art.
If you can give, even a little, please. I have no pride anymore. No shame.
I have Venmo and PayPal (lysa.hoffman@gmail.com). An Amazon wishlist (which right now is mostly a holding place to watch the price of bras I desperately need to replace).
Asking for help shatters the last bit of hope I had.
From this Friday, 542 days later, and today:

Mojo (whatagoodboy) waiting to be seen by Dr. Romano for his well-baby checkup and dental work. This little dude is the more scaredy-cat of my pair of knockabout clowns, but he really is an amazing creature. He always knows when his Momma needs him and snuggles right in.
UPDATE: Home now, a little wobbly, but really none the worse for wear💜💜
And that was more than my entire paycheck. Worth it. Worth every penny.
But still more than my paycheck.
I stopped paying my mortgage in September. I never had the intention of completely defaulting but the bank (thank, Wells Fargo!) refused to work with me until I did, until I had completely destroyed my credit. My house, our house is now in foreclosure. I have come around to the idea that I need to find a smaller place. That I need to let go of this place. The idea no longer terrifies me; I’m resigned to it. I need to stay in this city that I have grown to love, Peekskill, where my created family lives.
I am simply frozen. There is so much I have not gotten done, so much piling up and broken. So much I know I’m overpaying for (hello, Verizon wireless and internet!) but am completely unable to take care of. I certainly don’t need the upload/download speeds that Gary did, but I know for sure I’ll get taken advantage of. Because that is what happens.
I am adrift.
As the inevitable waves of depression wash over me I do everything I can to ease them: listen to the “groovy shit” and “boss BITCH” playlists I made on Spotify, write, snuggle wee beasties, plan playtime, EAT SOMETHING FFS, use some CBD, head into the studio to set type for the orders I desperately need to print. Messing about with my little secret garden. My mother is coming over in a few hours to help me clean and organize, to help make some sense of this mess. Knitting with one of my best girls was cancelled because her shitheel of an ex has yet again decided to be a totally pernicious twit of a narcissistic asshole. So instead of knitting and dishing, I’m writing, and listening to good music while snuggly bois wind around my legs. And making my plan for the day.
Which, as I see it, isn’t the worst thing that could be happening. I’ve managed, by spending this time writing and attaching Spotify links and stuff, to elevate my mood. I’ve responded to an email chain that continues to make me happy.
Gotta go. Shower’s running.
“Just imagine, we woke up in paradise
Don’t need magic, let my force just carry us home tonight
Future’s golden, don’t let go don’t give it up
Just keep holding, even when you had enough
I will be your light
“When you’re low, I’ll lead you home, Chariot
Take you back to where you’re from, Chariot
“One step forward, on the road ahead of us
Don’t look back, no…” — Chariot by Mega
I’ve been having the most strange and wonderful feeling, way down deep to the very core of my soul. Don’t get me wrong; my life is utter chaos for the most part but I cannot even with that yet. I just cannot. It’s just… amidst the bomb cyclones and tornadoes and lightning storms there is this oasis, this ethereal calm that I am experiencing. This absolute letting go. Of letting pleasurable feelings suffuse my entire body, take over every atom of my being, to submit fully to them, to abandoning myself to them. Of inspecting unpleasant feelings, tasting them, knowing that succumbing to those will sicken me, and allow them to pass with as little interference as possible. To apologize without being sorry because that will cause me the least pain and give them what they want. To apologize in addition to being sorry, not receiving any acknowledgement, and being okay to walk away from that. That I don’t have to make the offending party see my side. That I can truly be done and walk away. That is a fucking alien concept. Foreign. Strange. And wonderful.
To be, well I wouldn’t say comfortable, but certainly 100% okay with others’ uncomfortability at my own fuck you-ness at things I just don’t wanna. My fuck yeah-ness at the things I do. To throw caution to the wind and say the things I feel when I feel them because LIFE IS FUCKING SHORT. To not feel guilt for unfriending, for ending things and blocking, for being blunt when it is the least bit necessary.
To say that I don’t think I would ever have evolved to this state had Gary not died is painfully sharp and bright. I wouldn’t have had to. It is me against the evil in the universe and I have become much cleverer at spotting it before there’s too much damage done. I also feel a greater, deeper capacity for empathy, for gentleness, for softness. The obverse to my pointy, barbed side.
“Future’s golden, don’t let go don’t give it up
Just keep holding, even when you had enough
I will be your light…”
We ride across the sky in a golden chariot of hope, fully cognizant of the eventual fall. The ride is worth it.