13 July, 2018

I was asked by someone I love who is going through a devastating, continuing loss, “How are you still alive after Gary?”

How am I still alive.
That’s a very good question.
Here’s what I told her:

Every day. Every goddamn day is a struggle. Everything that is here to remind me. Everything I experience that I want to share — and can’t. One morning it was seeing the new goslings on my drive to work that had me needing to pull the car over as I wept. Because I wanted to call him and tell him about them.

All of the new things, these things that I’m experiencing for the first time, things we’ll never share, that I’ll never get to show him, tell him. The hardships that come from not having any part of him here; not his input, his help, nothing. I’ll never see him wink at me again, never hear anything new in his voice. I have a few voicemails that I listen to, silly things, really. “You keep yarn on the porch?” Yes. Always yes.

The idea of losing the house is very real, and terrifying. Knowing I need to sell as many things as I can, the rower, the elliptical, everything. I need the stability that this place still provides. The banner I put up for his birthday years ago that looked so fun and cheery that I left it up.

I don’t know how I’m still alive.
Stubborn, I guess. Sheer force of will. 
I haven’t given myself the choice.

In the meanwhile, I write. I eat like garbage, I stay up too late. I try to not fuck up my job. I try to spend time working on my website, on new work to sell, but there are days, most days, that I just cannot. I act recklessly, although somewhat less so, recently. I reach out for help in ways that aren’t good for me, no, not at all.

“Well-intentioned” but utterly thoughtless people offer all sorts of useless advice under the aegis of “just trying to help”. There is no actual thought process behind the initial logorrhea. It’s only to make themselves feel better:

Q: “Why don’t you sell the house/take in a boarder/do Airbnb?”
A: I don’t have the money to fix the house up so that I can sell it/live decently, much less offer it to someone else to live in. Also, I don’t trust strangers around Mojo and Teaz’ka. I don’t trust anyone to treat them with the same care that I do. Please stop suggesting this. I have no patience left for answering, and I just may bite the next person who asks.

Q: “Why don’t you go on disability?”
A: I’d lose the house. See above.

Q: “Why don’t you get a job closer to home/get a second job?”
A: Certainly, getting a job closer to home would help a lot with all of the time and money I spend commuting. However, there’s not going to be anything that I’m qualified for close enough to make a difference. I don’t have a degree. Working 30 hours a week at the eyeglass shop leaves me both too many and too few hours working there. Too many to make getting a second job viable without completely exhausting myself; too few to actually make anything near a living. Additionally, I barely have any time to make work for myself. Getting a second job would leave no time whatsoever, and then all I would be doing is working to pay bills and nothing else. And I really would rather die than do that ever again.

I said to her, “I understand, perhaps better than anyone you know, this loneliness you’re experiencing right now. And I am truly sorry. Because it is wretched.”

Today is 10 months since Gary died. I cannot believe that he’s been gone this long. I don’t know what to do, I still don’t know what to do. And I’m failing at everything. Except, of course, for looking strong, for faking it incredibly well. Because in the end, isn’t appearance all that anyone cares about? Not being made to feel uncomfortable in anyone’s presence? My sheer existence makes people uncomfortable.

Most recently, say, these past few months, I’ve allowed myself to be open, desperately flinging wide my arms to catch what might ever come close. Pinwheeling, windmilling, spiraling. I am being, as ever, the only way I know how. Open. Brutally honest and clear. And it is terrifying. Terrible, feeling like betrayal. But I need, am a needful thing.

And then? A small and persistent hope burns, glows. Lights me from within. Nudges gently, but firmly, guiding me. I can breathe, I can hope. This small light doesn’t burn away the cold, but it does make it bearable.

I’m embracing it, nurturing it, trying to not suffocate it, to scare it away.

breathe. 3 July, 2018

Today was pretty okay.

Yesterday though, yesterday was most definitely not okay.

Yesterday I came as close to suicidal as I have in a very, very long time. Yesterday I nearly gave up; gave in. Was frantic enough, manic enough to not be able to focus for long enough on the idea of Teaz’ka and Mojo to keep me off the razor’s edge. Yesterday I nearly lost everything; my struggle with my illness, my sanity, my life. Exactly six people had any glimmer of an idea that I was in trouble; two of them I work with, who listened to me struggle to keep my composure at work. The second two had the misfortune of being on the other end of the phone working at places I desperately needed help from and were as sympathetic as their scripts would allow but absolutely got off the calls as quickly as possible because really, who wants to listen to that. The final two, only these most important two humans know the actual extent, the depth of the abject terror I was in thrall to. To these two I am eternally grateful. You helped to save my life. You listened (over text because again, I was working and could just manage texting) and gave me the virtual equivalent of soft murmurs and comforting touches. “Breathe”, you both admonished carefully. “Just breathe.” What I heard, what I took away was “Keep breathing, just keep breathing. I’ll help you. I’m here”. You listened not only to my words but to my tone, my cadence, my silent keening. You were there.

To the rest of my friends, my family, I cannot “just reach out” and “let you know” if I need anything. I cannot. It is the most difficult thing to admit, to take in, that I need help. Obviously I know that I need help, that I am struggling, suffering mightily, that I cannot do this all by myself. “But you’re strong!” you might think. “You’ve done so well!” you comfort yourself, thinking that I really am doing so well. I am not. I am not strong. I am not doing well, not at all.

I am failing, breaking. Things are failing, breaking. Systems, physical things, mental things, failing. Breaking. The CPAP mask I use to breathe at night is two years old. Designed to fail after six months and be replaced. Going through insurance is a nightmare on the best day, so Gary and I had gone around insurance, paying out of pocket. This time it would still be out of pocket since I haven’t yet my deductible, but it would go towards fixing that. I’d done the work to get mine replaced, yes, late, but I should have it by now. I don’t. Glitches between systems causing failures, no one advising me of that, just wasting time as my sleep dwindles to near-zero. Summertime homicidal dysphoric mania/mixed states coupled with no sleep throupled with 100° temperatures outside/86° temperatures inside my house. Take away nearly every cent I have to pay for luxuries like housing and commuting and bullshit expenses like electricity and oil and food. Pile on predatory degenerates hunting widows like game for a tv show. Mix in fear for my father’s upcoming surgery and all that entails, needing more than anything to be there to see his face when he wakes up, both for his sanity and my own.

I’ve had a consultation with an MMJ doctor, have been prescribed medical marijuana. The time in between the relief of the consult and attendant prescription, waiting for my card to come from the Department of Health, waiting to register and make an appointment at the dispensary in White Plains has been excruciating. Scraping up the money for that doctor’s fee, while well worth it, has been eye-opening; humbling. I won’t go into detail. In between that, I’ve availed myself of hemp-based CBD which has helped, but yesterday? Nothing helped; nothing touched my fear. I kept from taking the Klonopin in my purse by not wanting to feel dead. As much pain, as much anguish as there was yesterday for me, my two, what? Saviors, angels? No, because they are so very human, but these two walked me away from the edge, talked me down from the breathless height of that pain. Breathe, they said. I breathed. Between the three of us I was able to calm down enough to just breathe, to use the CBD and exhale, to let it work. Enough to give in and accept the gift of a new mask. Enough to get me to the appointment at the dispensary. Enough to talk coherently (I think) to the pharmacist who wore a shirt that read “cannabis is medicine.” Enough to drive home with my new medicine, to medicate and feed the cats, to then take my own new meds. And they work.

I still have no idea how I am going to make it work, to make ends meet, none at all. I work, I commute, I make and sell my art. It isn’t enough. There are things I can do, have done, of which I am not proud and of which I am even less comfortable, that help. Which I think cannot be avoided to an extent.

Today was pretty okay, calm, even. Thanks to people I love, people who love me, to MMJ, to breathing.

I am breathing. Still.

Widow hunting. 27 June, 2018

Originally posted to my personal Facebook feed.

WHAT THE MOTHERFUCKING FUCK IS WRONG WITH PEOPLE.
This fucking asshole, Scott Goldstein of Discovery Studios reached out to me through A GODDAMN ORGAN DONATION FOUNDATION FACEBOOK PAGE with this bullshit. LiveOnNY please please help me respond to this piece of shit. I’ve called Discovery Studios and have been promised a call back.* I am absolutely beside myself with grief and rage and I cannot fucking deal.

Shouting into my phone provides some interesting grammar and spelling.

*They never called back.

27 June, 2018

The following is from two years ago today, from the third, and penultimate ablation surgery.

Although the doctors Gary had are some of the best in their field, at the top of their game, ultimately the care they provided for him wasn’t enough. His body simply gave out.

Although our lives were filled with uncertainty and dread, we were together, we had each other. My life now is still filled with uncertainty and dread, but I no longer have my husband. I can no longer console myself by looking at his sweet face, no longer can I reach out to touch him, to settle his nerves and mine, no longer be soothed by him saying the magic words, “you’re still going the right way”.

None of my “free time” is free anymore. Every waking moment is spent trying to figure out how to save our house, to take care of Teaz’ka and Mojo and myself, how to save what he and I built. I need help.

******

27 June, 2016 | 6:08pm | Gary is out of surgery. They had to go to the outer surface of his heart, were able to push his frenic nerve out of the way “a little bit”, were limited in what they could do by the placement of other arteries. They ablated what they could, and he will be in the CCU soon, recovering. As soon as they let me in there, I’m gonna smooch him.

Boy howdy is he gonna be hungry.

Cribbing from a master. 23 June, 2018

“…I cannot rest from travel: I will drink 
Life to the lees: All times I have enjoy’d 
Greatly, have suffer’d greatly, both with those 
That loved me, and alone, on shore, and when 
Thro’ scudding drifts the rainy Hyades 
Vext the dim sea: I am become a name; 
For always roaming with a hungry heart 
Much have I seen and known; cities of men 
And manners, climates, councils, governments, 
Myself not least, but honour’d of them all; 
And drunk delight of battle with my peers, 
Far on the ringing plains of windy Troy. 
I am a part of all that I have met; 
Yet all experience is an arch wherethro’ 
Gleams that untravell’d world whose margin fades 
For ever and forever when I move. 
How dull it is to pause, to make an end, 
To rust unburnish’d, not to shine in use! 

As tho’ to breathe were life! Life piled on life 
Were all too little, and of one to me 
Little remains: but every hour is saved 
From that eternal silence, something more, 
A bringer of new things; and vile it were 
For some three suns to store and hoard myself, 
And this gray spirit yearning in desire 
To follow knowledge like a sinking star, 
Beyond the utmost bound of human thought…
…There lies the port; the vessel puffs her sail: 
There gloom the dark, broad seas. My mariners, 
Souls that have toil’d, and wrought, and thought with me— 
That ever with a frolic welcome took 
The thunder and the sunshine
, and opposed 
Free hearts, free foreheads—you and I are old; 
Old age hath yet his honour and his toil; 
Death closes all: but something ere the end, 
Some work of noble note, may yet be done, 
Not unbecoming men that strove with Gods. 
The lights begin to twinkle from the rocks: 
The long day wanes: the slow moon climbs: the deep 
Moans round with many voices. Come, my friends, 
‘T is not too late to seek a newer world. 
Push off, and sitting well in order smite 
The sounding furrows; for my purpose holds 
To sail beyond the sunset, and the baths 
Of all the western stars, until I die. 
It may be that the gulfs will wash us down: 
It may be we shall touch the Happy Isles, 
And see the great Achilles, whom we knew. 
Tho’ much is taken, much abides; and tho’ 
We are not now that strength which in old days 
Moved earth and heaven, that which we are, we are; 
One equal temper of heroic hearts, 
Made weak by time and fate, but strong in will 
To strive, to seek, to find, and not to yield.”

(excerpted from Ulysses, by Alfred, Lord Tennyson)

Nine months gone. 13 June, 2018

Nine months.

Nine months, six hours, and twenty-nine minutes ago, the doctors called your time of death.

You’ve been gone the same amount of time it takes a human baby to be born.

I spent most of today hoping for distraction; trying for oblivion, something to keep me occupied enough to not think. I went to the pottery; that piece I’d hated? I reglazed and put back in the salt. It is gorgeous, Gary, transformed, glowing with a deep intensity and quiet. Nothing resembling calm, no, but definitely Quiet. There is a depth to its finish, a complexity in details that didn’t exist before; details that only came through after another 2300° fire. There is a warmth, there, as if it holds on to some of that fire.

I’m trying so hard to make it through a day without weeping openly, trying desperately to choke down all of the sharpness, and then I think, why? Why bother trying to not feel? I mean, sure, keep it together in public but in the car? The bathroom at work? At home? Why not just melt? Why not just give in? Why try at all?

This is why. Keeping enough of my head level and my hands steady so I can make this. This is why. Bringing this bowl from a hunk of raw clay through three firings, neglect, dispassion, disapproval. This result, this bit of beauty, this is why I need to try.

I know that if you were here, I’d be excitedly explaining to you why this piece is so special, the unpredictability of this perfect a finish. You’d listen, not really getting why I was so excited about something at the furthest extreme, an unorthodox version of beauty, but maybe by now you’d be able to appreciate my passion, even without agreeing with it. Your inability to appreciate so abstract a piece was just beginning to soften when you died. You were getting it.

You were getting me.

I can be happy, with that. That very beginning; I can be happy with that.

I miss you, today and every day.
always,
your curious girl💜💜

Volcán de Fuego. 8 June, 2018

The past nine months have been truly horrific for me, and these last few days of tragedy coupled with my own bipolar springtime suicidal ideation edging into summer homicidal tendencies are trying every last atom of my nerves. If I seem sharper than usual, my eyes brighter and more glittery, please know that it is not with happiness. Please know that I am on the sharpest edge possible. I am keeping my shit together with the most Herculean of efforts.

If you’re a friend of mine, know that I love you. Very, very much. If you’re reading this, know that I love you. Even if we’ve never met.

You are loved. You matter. Everything is terrible and it can always get worse. The only thing constant is change. Be the boat on the waves, not the rock in the ocean. This too shall pass and it is all for the good.

And in the immortal words of my dead husband, “you’re still going the right way.”

Babies. 7 June, 2018

Ten. The babies are ten years old today. Oh-six oh-seven oh-eight.

Teaz’ka and Mojo. Ivan Rumpelteazer and Yevgeny Mungojerrie. The $50,000 Rescue Cat and Sgt. Mojohowicz. Stinkerbelle and The Fangster Gangster. My fanged, furry barnacles. My constant companions since you died nearly nine months ago.

My love, you worked from home, were home all day for them, *their* constant companion (whether or not you paid strict attention to them). They taught you their games, taught you how to play Fetch, Human! Teaz’ka became your 3pm alarm, telling you he needed his second dose of phenoxybenzamine.

Since your death, any time that I am anywhere close to being horizontal, there is at least one of the two on me, and usually both. They both sleep on me at night, in the middle of our king-sized bed. They are never far from me when I am home. I worry, now, about what would happen to them should something happen to me. I trust no one to care for them as I care for them; no one. The doors are always locked the second I get home, my phone is always with me. A few very close
friends have keys to the house, just case. I am remiss in not writing out their care plans, their medication schedules, sharing my passwords with those friends for just in case. I’m not sure that I haven’t begun to become a bit more mad than I already am over this.

They are literally the most important parts of my life now, the reason I get up every single day. My friends, my family, I love you but you simply do not need me the way these two little creatures do. This isn’t to say that I do not love some among you more than I can express, more than I think some of you can handle, and I know that there are those among you who I lean upon with a sometimes (and many times frequent) desperate intensity. I know that some of us share a calm when we’re together; that we are a peaceful respite for each other. These boys these *cats* are my respite when nothing else no thing else no one else can help me. When there is nothing but noise and rage and pain in my head and heart these two beings are what keep me here.

For those of you who have met them, have had the pleasure of their small, soft, warm bodies snuggling into you, you get it; you know. I trust their judgement; there is not a single person I’ve allowed into this house in the last nine months who I’ve not felt comfortable around. They are my keepers as much as I am theirs; we take care of each other.

Happy birthday, babies. I wish your Daddy were here.

Two tiny, five-week old kittens in my husband's outstretched hands
Teaz’ka (front) and Mojo in Gary’s hands at five weeks old
Two tiny kittens in a cat bed
Tongue-out Teaz’ka and Mojo resting after getting cleaned up (sort of)
Two much-larger, ten-year old black cats snuggled on top of me
Mojo (front) and Teaz’ka on their favorite cat bed: Momma